Great Ormond Street Hospital Family Day

The Family Fun day was a great success for participants and their families. For the first time Frame Football was offered to participants aged between 4-10 years of age. A total of 18 took part, and for the majority of these it was their first experience of Frame Football. The majority of those taking part have recently had or are due to have the Selective Dorsal Rhizotomy (SDR) surgery. 
Alongside Cerebral Palsy Sport, also at the event were the Frame Football Foundation, and Quest 88, who brought frames down and spoke to families during the event. The Arsenal Foundation brought coaches down who helped deliver some of the football activities for patients and their family members who attended.

Feedback from the participants and their families was really positive

Participants:

“It was fun with the family”

“Amazing”

“Really enjoyable and inclusive”

Family

“Lovely to see our daughter having so much fun”

“This was a really enjoyable, well organised and inclusive event, thanks you”

YST’s National School Sport Week

Youth Sport Trust (YST) and schools up and down the country are marking a week-long celebration of the power of Physical Education and school sport to improve young people’s wellbeing.

YST National School Sport Week (NSSW) will inspire schools and supporters to use Physical Education and school sport much more intentionally to promote wellbeing and support the personal development of young people between 24 and 28 June. 

The theme of the YST’s awareness week is ‘Five Ways to Wellbeing’ and Cerebral Palsy Sport will be sharing this alongside schools, teachers, parents, young people and others across the country to show why PE and sport should be considered an essential part of the curriculum alongside Maths and English.

Across the week, Cerebral Palsy Sport will be among those supporting calls for how PE and school sport help young people to experience the five widely-recognised ways to wellbeing.

Ali Oliver, Chief Executive Officer at the Youth Sport Trust, said:

“The focus of YST National School Sport Week 2019 will be on raising awareness of the vital role of PE and school sport in helping young people experience the ‘Five Ways to Wellbeing’: i) getting them active, ii) connecting, iii) giving back, iv) taking notice and v) learning.

“I’d urge anyone who cares about young people’s health, happiness and success in school to sign up and join our campaign to improve young people’s lives.”

Anyone can take part in YST National School Sport Week by signing up at www.youthsporttrust.org/nssw. The charity will share key developments and provide free resources with schools and supporters to help promote events and offer tips and ideas for getting the most out of the week.

Follow and join in the conversation on social media using @YouthSportTrust #NSSW

Cerebral Palsy Sport provide training, resources and information to support inclusivity in school sport.

The FA Disability Cup 2019

The FA Disability Cup provides a great showcase for Impairment Specific Football. This year’s event took place over the weekend 15th – 16th June at St Georges Park. The Cerebral Palsy Final took place on Saturday afternoon between CP North West and North East & Yorkshire.

CP North West we aiming to complete the treble, having won the CP Sport National Cup in Nottingham in February and then winning the CP Adult National Football League in April.
North East and Yorkshire finished second in the league and were previous holders of the FA Disability Cup having won the 2018 Final.

CP North West started strong and created chances early on and managed to get the breakthrough to take the lead. That gave them a platform to build momentum and take a 4-0 lead. Just before the half North East & Yorkshire managed to pull a goal back.  Second half and CP North West went back on the attack and managed to add to their score to eventually win the match 8-1.

Well done to both teams for an entertaining final and to CP North west for completing the treble this season.

Cerebral Palsy Sport open nominations for the 2019 Awards!

The Cerebral Palsy Sport Awards are back for a 4th year with the ceremony taking place on World CP Day, Sunday 6th October, at the David Ross Sports Village, University of Nottingham from 5pm – 6.30pm

The 2018 awards were a great success with nominations coming in from all across the county. The awards provide a fantastic opportunity to recognise all those involved in participating, delivering and supporting sports and activity for people with cerebral palsy and associated physical impairments.

The award categories and nomination form for 2019 are:

Additional awards that will be presented on the day are; The Andrew Stubbs Trophy,  Swimmer of the Year,  Colin Rains Trophy for Endeavour, Fundraiser of the Year, Young Fundraiser of the Year, Fundraising Team of the Year, Lifetime Achievement Award and Partner of the Year.
The top 3 nominations in each category will be invited to attend the ceremony where the winners will be announced.

The Awards will be taking place after the Cerebral Palsy Athletics and Swimming Training Camp and AGM on the same day. We will also be recognising and celebrating World CP Day.

If you believe that someone you know deserves to be recognised, or you want to say thank you for all of their hard work and dedication then please find our online nomination forms in the above title categories or you can download a word version here

The deadline for nominations is 2nd August 2019

The results and photos from the 2018 Awards can be found here

If you would like any further information about the Awards please contact info@cpsport.org

ONLY 4% OF PARENTS WITH DISABLED CHILDREN SAY THEY RECEIVE THE RIGHT SUPPORT TO CARE FOR THEM SAFELY.

Disabled children and their families are missing out on vital care and support as a result of government cuts, the Disabled Children’s Partnership (DCP) has found. This is harming children and families’ physical and mental health, breaking parental relationships and causing children to needlessly miss out on school or college. Families of disabled children, backed by the DCP, demand the government gives back £434 million owed to them in social care, support and provision.

DCP’s survey of 3,424 families with disabled children, carried out during April found:

+ only (4%) of parent carers feel they get the right support to safely care for their disabled children.

+ more than half (54%) of parent carers have been treated by a GP for depression, anxiety or stress (including suicidal thoughts).

+ 53% of parent carers have been forced to give up a paid job to care for their disabled child.

+ 40% of parent carers have experienced relationship breakdown with a partner since diagnosis. 64% of those say a lack of support had a major impact on the breakdown of a relationship.

+more than a third (37%) of parent carers say their disabled child has missed school or college because the staff or services are not available to support them.

+ a third (33%) of parent carers say their disabled child has been in unnecessary extra pain because the right equipment, doctor or health service hasn’t been available.

DCP’s findings are further evidence of the devastating impact that the £434 million hole in local government social care spending for disabled children is having on vulnerable families. This is laid out in a letter to Chancellor from the family of Oliver Lewis, seven, from Southampton.

Oliver has an ultra-rare genetic disorder which means any muscle in his body, from his arms, to his heart, can become paralysed for anything between minutes to weeks.

Mum, Vickey Lewis, writes: ‘Ollie needs constant supervision and can never be left alone. He can stop breathing at any time, day or night. We put him to bed and pray that tonight won’t be the night that he stops breathing and doesn’t start again.

‘Ollie used to be able to walk and eat orally, but now he uses a wheelchair and gets virtually all of his nutrition through his feeding tube.

‘Like so many others, we get no support to help us care for Ollie.

‘Support would mean that we can simply be mum and dad to Ollie and Lisi rather than having to constantly think about what medications are needed or when the next feed is due or when he last had a wee. In the holidays it would mean that Lisi can play and have her childhood back. 

‘And after seven years, Adrian and I would not have to choose between sleep or our child surviving. It would reduce the risk of Adrian and I becoming yet another statistic among the thousands of families with a disabled child that break down. We would know Ollie will be safe and could give Ollie and Lisi the best possible life experiences.

‘I know that our story is not unique that’s why we’re asking the Chancellor to give back the funding rightfully owed to our family and thousands of others like us.”

The DCP, a coalition of more than 60 leading disabled children’s charities, is calling on the public to sign Vickey’s letter too which asks for funding to be returned and for disabled children to be seen as a priority for government. The DCP wants to see the most vulnerable children in England at the heart of the government’s next Spending Review.

Disabled children are legally entitled to home support, access to equipment and a quality of life. But local authority cutbacks mean they are missing essential services or enduring poor quality support, with the result that children’s health is further deteriorating because of a shortage of equipment, some children are unable to attend school because support is not there, parents are unable to work, families are breaking down and parents’ mental health is suffering.

Amanda Batten, Chair of the Disabled Children’s Partnership, says: “Services for disabled children have never been perfect. But cuts to budgets combined with a 33% increase in the number of disabled children over the last decade means we have reached a critical point – one where we need to decide what kind of country we want to be. We’re talking about some of the most vulnerable children in society.

“And that’s why we’ve launched our Give It Back campaign today, calling on the Chancellor to give back the £434 million missing from vital services that help families care safely for their disabled child. This isn’t just about doing the right thing, there is also an economic case here too. Without putting back funding into disabled children’s services, we can guarantee that the tax payer will be faced with a bigger bill in the long-term. That’s because when families break down, expensive crisis interventions are needed from local councils or the NHS. Join us today in calling on the government to Give it Back.”

A powerful short film will be released on social media on 3 June giving voice to parents’ everyday concerns and asking the government to #GiveItBack.

Volunteers’ Week 2019

Cerebral Palsy Sport will be celebrating the difference volunteers make to the charity and thanking them for all their time and dedication during this year’s Volunteers’ Week, which runs from 1-7 June. 


Volunteering at Cerebral Palsy Sport can cover many different activities from being a sporting official to a trustee on the board, from educating to fundraising and we want volunteering for Cerebral Palsy Sport to be a rewarding and worthwhile experience for all of our volunteers.

In 2018, volunteers gave a total of 3,051 hours to Cerebral Palsy Sport events, in roles such as officials, refreshments sales, programme and raffle ticket sales, medal ceremony support, photographer and event marshals.

We will be sharing information about the impact volunteers have for our charity, supporting many children and young people with cerebral palsy to participate in sport.

For more information on volunteering for Cerebral Palsy Sport please visit our volunteering page

New research: Challenge non-disabled people’s perceptions to change reality for disabled people

New research released by Activity Alliance shines a light on non-disabled people’s attitudes on inclusive activity with disabled people. Although the results show welcoming signs of improvement, ingrained perceptions are creating barriers in changing the reality of disability, inclusion and sport.

Taking part with disabled people: Non-disabled people’s perceptions is the result of anonline survey, conducted with more than 2,000 non-disabled adults. Focused on the concept of inclusive activity, in which disabled and non-disabled people take part together, it examined respondents’ perceptions and experiences.

The findings present a varied picture, indicating non-disabled people’s perceptions could be preventing them from taking part in this mixed setting.

Chance to change perceptions through sport

The results show the positive opportunity to change perceptions through sporting activity. Three quarters (73%) of non-disabled people were open to the idea of taking part in sport or active recreation with disabled people. Non-disabled people recognised the positive impact taking part in inclusive activities could have on themselves. The top-three benefits mentioned were that they could learn more about disabled people (60%), meet new groups of people (57%) and feel more comfortable around disabled people (44%).

Around a quarter of respondents instinctively associated disabled people with being ‘equal to non-disabled people’ – potentially driven by an awareness of the discrimination that disabled people face. Respondents believed people with mental health problems, behavioural conditions, learning disabilities and physical impairments to be the groups experiencing the greatest prejudice in the UK today.

However, they showed unfounded concern for the negative impact that taking part together may have on the wellbeing of disabled people. Non-disabled people’s top-three concerns were that they may patronise disabled people (53%), disabled people may get hurt (47%) and that non-disabled people may say something inappropriate (37%).

The inconsistency in language used by providers in promoting mixed activities was evident. Around two thirds (67%) of non-disabled people had no prior knowledge of what the term ‘inclusive sport’ means. Three quarters (74%) of them however showed an awareness that inclusive sport is ‘for everyone’.

Unknown experiences with disabled people

General lack of awareness, inexperience and unfamiliarity with disabled people are apparent in the results. Disabled people are a large proportion of our society – one in five people. Yet, just one in seven (14%) non-disabled people were aware that they had taken part in sport or physical activity with disabled people and only half (48%) said they knew a disabled person.

Gap between ambition and reality

This report adds to Activity Alliance’s growing portfolio of research and insight that explores disabled people’s and their influencers’ barriers to and perceptions about being active.

In the Lifestyle Report, findings highlighted a clear mismatch between how disabled people prefer being active and the availability of such opportunities. Here, six in ten disabled people (64 %) surveyed said they prefer to take part in sport and activity with a mix of disabled and non-disabled people. But only five in ten (51%) currently did. 

Disabled people also echoed this mixed-setting preference in the Motivate Me report. This study showed that a great majority of disabled people are more likely to respond to opportunities to get active which tap into the things that matter to them most. This includes building friendships, maintaining health, becoming more independent and progressing in life.

Barry Horne, Activity Alliance’s Chief Executive, said:

“To increase the numbers of active disabled people, we need to see more opportunities that are not only meaningful, but also respond to demand. Whilst we acknowledge not every disabled person wants to take part in a mixed setting, our insight shows most want to be active with their non-disabled friends and family. We can see the impact with our own programmes, like Get Out Get Active, that encourage providers to think wider than segregated sessions. We all need to improve the way we market activities and the wider messages we use. All this leads to more choice, which is surely good for everyone.

“This report flags a number of public misconceptions about disabled people and how that can impact on activity. It can come from a lack of awareness and no open discussions with disabled people. In reality, there is a high chance you are already taking part with disabled people, but it hasn’t come up in conversation. Based on media coverage, the public can often have a stereotypical image of what an active disabled person looks like. But who says you have to be an elite disabled sports person or take part in a set way to be active?”

Adam Blaze, Strategic Lead Disability, Sport England, said:

“Sport and physical activity has the power to bring together people of different ages, backgrounds and experiences, but too often people’s perceptions of others can prevent this from happening. By breaking down these barriers there is significant potential to reduce the gap in activity levels between disabled people and non-disabled people, resulting in many more friendships and connections, greater social cohesion and more disabled people getting the benefits of being physically active.

“We know that two thirds of disabled people would prefer to take part in sport and physical activity in an inclusive setting alongside both disabled and non-disabled people. Using this research from Activity Alliance, Sport England will continue to lead the sports and physical activity sector to become more inclusive and provide the right opportunities for disabled people to get active and stay active.”

Taking part with disabled people: Non-disabled people’s perceptions responds with three recommendations and required actions for sport, leisure and other sectors. These could help to ensure that non-disabled people feel able and willing to participate alongside disabled people.

  1. Increase public awareness of disabled people, especially in relation to being active. This must aim to challenge perceptions and create a more accurate and diverse picture of active disabled people among their non-disabled peers.
  2. Embed inclusivity in many more opportunities so disabled and non-disabled people can be active together.
  3. Celebrate and share experiences of inclusive activity with representation for all impairment groups.

UK Anti-Doping launch Clean Sport Week 2019

This year marks UK Anti-Doping’s third Clean Sport Week, which launches today, Monday 20th May.

This year’s campaign, which will again have the support of a range of National Governing Bodies (NGBs), sports organisations and UK sports stars, will celebrate clean athletes and their success, and promote the work of the anti-doping community in the fight for clean sport.

The campaign will also have a strong focus on Image and Performance Enhancing Drugs (IPEDs), and particularly the attitudes towards, and motivations for use of, IPEDs in the gym environment. New research is set to be revealed during the week by UK Anti-Doping to encourage a wider public debate on the issue. 

A number of events will take place between 20-26 May to help raise awareness of clean sport and anti-doping programmes led by UKAD, NGBs and sporting bodies across the UK. The campaign will also feature social media videos from a number of UK athletes showing their support for clean sport, through a series called ‘Feat of Strength’.

Nicole Sapstead, UKAD’s Chief Executive, said: “This year’s Clean Sport Week focuses on Image and Performance Enhancing Drugs (IPEDs), particularly in the gym environment.

“Following a number of media reports in recent months, concerns are growing around the use of IPEDs in this area, particularly with trends like the ‘Love Island look’, and the possibility of this seeping into the sporting arena.

“Last year’s Clean Sport Week was a huge success and hope this year’s event can drive the debate around IPEDs, as well as celebrate the successes of clean athletes and the excellent work done by National Governing Bodies and sporting partners to keep sport clean.”

UK Anti-Doping is responsible for ensuring sports bodies in the UK are compliant with the World Anti-Doping Code through implementation and management of the UK’s National Anti-Doping Policy.

UK Anti-Doping’s functions include an education and information programme, athlete testing across more than 40 Olympic, Paralympic and professional sports, intelligence management and exclusive results management authority for the determination of anti-doping rule violations.

For more information on what UK Anti-Doping do, please click here.

Junior CP Football Festival to be rearranged for July

The Junior CP Football Festival and FA Talent Day planned for 25th May 2019 has had to be rearranged.
A new date will be confirmed soon which will be in July 2019.

For more information or to register interest in the event please contact the National CP Football Development Officer

Richard.kerr@cpsport.org

0115 925 7027

Make the NSPCC’s Positive Parents Promise

Ahead of Parents in Sport Week 2019 (October 7th – 13th), the NSPCC are asking parents to make a promise to their child to make sure they have safe and enjoyable experiences of sport.

This annual national campaign looks to increase positive parental involvement in youth sport and, by doing so, improve the experiences of young people across the UK.

This year’s aim is to get parents to make The Positive Parents Promise to encourage their child’s safe enjoyment of sport. 

The Promise, launched earlier this month outlines what makes a great sports parent. The NSPCC are asking parents to sign up and make the promise to their child by the end of Parents in Sport Week 2019.

Making this promise allows parents to acknowledge the contribution they make to their child’s enjoyment of sport, and allows clubs, coaches and other sports organisations to really get parents on board and take an interest in their child’s sporting life. 

The promise will be supported by important and helpful information parents need to help keep their child safe in sport and support them in the best way they can.

Make the Positive Parents Promise here